CHD Navigation Resources

Empowering CHD Patients With Knowledge, Resources, and Support

At EmpowerMyCH, we empower patients by providing the knowledge they need to make informed decisions about their health. Our tailored resources help individuals confidently navigate the complexities of CHD through education, self-advocacy, and collaboration with healthcare providers.

Resource Library

7
Guides Available
3
Main Topic Areas
Free PDF Downloads

Patient Guide

A Guide to Choosing Your Care Team for Congenital Heart Health

What Patients are Saying: "The definitions of defect versus disease will help me explain my heart condition more effectively in the future."

Patient Guide

A Peer-Powered Guide to Confidently Navigating Your Cardiologist Appointments

What Patients are Saying: "It's helpful to have a step by step understanding of how to better one's doctor appointments and stay organized."

Medical Guide

A Guide To Confidently Understanding and Navigating Your CHD Tests

What Patients are Saying: "I have had many of these tests for decades, but was never informed exactly what the purpose or specific things being measured were."

Medical Guide

An Empowered Approach to CHD Procedures

What Patients are Saying: "This information is helpful because it seems like they thought of everything I need to prepare for something like this, and it will help my family be prepared as well."

Wellness Guide

Championing My Health: From Awareness to Action in Symptom Management

What Patients are Saying: "It's helpful for those who are newly diagnosed and may not know what is considered serious or not for their health and wellness."

Wellness Guide

Your CHD Mental Health Toolkit

What Patients are Saying: "It's helpful to know that we not alone, and our feelings are valid."

Wellness Guide

Living Your Best Life: Your CHD Lifestyle Guide

What Patients are Saying: "It is detailed enough for me to absorb it, but not overly detailed where it goes over my head."

Katia Bravo

EmpowerMyCH Advisory
Board Member

EmpowerMyCH arises as a potential tool to help bridge the equity gap in adult congenital heart disease care. In a world where access to high-quality medical care is variable, building tools that can increase access to patient education is important to support vulnerable populations.

Katia Bravo, MD
ACHD Cardiologist • Jacksonville, Florida

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