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All guides
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How to find a specialist team — and tell if it's the right fit.
Choosing My Adult CHD Care Team
The definitions of defect versus disease will help me explain my heart condition more effectively in the future.
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How to prepare so the visit answers your actual questions.
Navigating Your Cardiologist Appointments
It's helpful to have a step by step understanding of how to better one's doctor appointments and stay organized.
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What each test measures — and what to expect during it.
Understanding and Navigating Your CHD Tests
I have had many of these tests for decades, but was never informed exactly what the purpose or specific things being measured were.
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Preparing for a procedure or surgery — for you and your family.
Facing a CHD Procedure or Surgery
This information is helpful because it seems like they thought of everything I need to prepare for something like this, and it will help my family be prepared as well.
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What your CHD anatomy and repairs mean for your future.
Know Your CHD: Conditions and Repairs
Community feedback coming soon. Patient quotes and helpfulness ratings will appear here as feedback is collected.
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Which symptoms matter, and when to pick up the phone.
CHD Symptoms: What Matters and When to Act
It's helpful for those who are newly diagnosed and may not know what is considered serious or not for their health and wellness.
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Eight kinds of mental health support, sourced from peers.
Your CHD Mental Health Toolkit
It's helpful to know that we not alone, and our feelings are valid.
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Day-to-day living — diet, sleep, travel, dental, and more.
Your Everyday CHD Lifestyle Guide
It is detailed enough for me to absorb it, but not overly detailed where it goes over my head.
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How to start moving safely — and which apps and programs help.
Getting Started Exercising with CHD
Community feedback coming soon. This guide was recently published — patient quotes and helpfulness ratings will appear here as feedback is collected.
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Pregnancy, insurance, family planning — when life changes meet CHD.
Going Through Life with CHD
Community feedback coming soon. This guide was recently published — patient quotes and helpfulness ratings will appear here as feedback is collected.
EmpowerMyCH arises as a potential tool to help bridge the equity gap in adult congenital heart disease care. In a world where access to high-quality medical care is variable, building tools that can increase access to patient education is important to support vulnerable populations.