What
- A Mobile and Web App
- A Digital Medical Passport
- Expert & Peer Guidance on Managing CHD
- A Supportive Community
- Patient Stories & Advice
400+ Participants
Patient-Led
UCSF Designed
Do you have congenital heart disease (CHD) and are you 18 years of age or older?
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Why
- To confidently navigate CHD and healthcare
- To make informed decisions
- To build a unique CHD community supporting each other and future generations
- To empower CHD patients to be active participants in their healthcare
EmpowerMyCH Advisory
Board Member
I am a CHD patient who had open heart surgery before my first birthday, so I know how difficult it is to obtain and maintain CHD-specific healthcare. EmpowerMyCH is a sophisticated tool that helps patients navigate the healthcare system and maintain continuous care. It has the potential to fundamentally improve the CHD patient's experience throughout their life.
Drezden Plotkin
Pulmonary Stenosis & Ventricular Septal Defect Patient • Nashville, TN
EmpowerMyCH Participants Gender vs. Age
EmpowerMyCH Advisory
Board Member
I have had the privilege to care for patients with congenital heart disease, and they have taught me so much. These patients make important decisions about their health and lifestyle which may be different from their peers. It's important for us as providers to equip them with the information needed to navigate the medical system and to ensure they are making good choices. Knowledge is power. EmpowerMyCH allows patients to find reliable information that can improve their understanding of their congenital heart disease.
Jennifer Gilmartin, NP
ACHD Nurse Practitioner • Kaiser Permanente Northern California
A study funded by the National Institutes of Health
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